I was recently honored to be selected to Nashville’s Top 30
Under 30 and with that distinction I pledged to raise money for Cystic
Fibrosis. So I am asking all my friends and family for help.
HOW – How can YOU support Cystic Fibrosis and make a
difference in many lives? First, go to my fundraising page below and donate,
every bit helps. Next, forward the link to your friends and family. It’s that
easy.
WHY - Why Cystic Fibrosis? For me it’s obvious. But for
those who don’t know, Cystic Fibrosis is one of the most common genetic
diseases in the U.S. with 1 in 25 people being symptom less carriers of the CF
gene. Additionally, 90 cents of every
dollar goes directly to CF research making this funding first class in
efficency. And I have witnessed first hand the life changing discoveries made
over the past 30 years making CF donations one of the most productive and
successful.
WHERE - Where will the money go? Donations go directly to
research to help improve and extend the lives of those with CF while striving
for a cure. What has been done with previous money donated and what are we planning
going forward? Research money for CF has lead to advancements moving the median
age of CFers from 5 in the 1950’s to 13 in the 1980’s to 37 today. This was
made possible by advancements from improved pancreatic enzymes to enhanced
respiratory therapies. Upon identifying the CF gene marker as part of the human
genome project in 1989 we’ve seen an explosion in new medications and
advancements. As for moving forward, we were recently introduced to Kalydeco,
Forbes Top Drug Discovery of 2012, a medication developed with the intent to
directly go after the defect in the CF gene. This is the first medication for
any disease functionally addressing the faulty gene causing the disease. While
Kalydeco is conditioned to help a portion of CF gene abnormalities right now,
the goal is to continue to endeavor forward to address all CF genes. These life
changing advancements have been made possible through donations. Can you
imagine what we’re going to be able to do next????
Thanks in advance for all of your help.
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